Friday, January 14, 2011

precursor?

Maddie is showing some strange or maybe scary behavior…there are times she does not recognize me…I know I have mentioned this before…but in the mornings when she is waking up and I get there a tad early she does not see me or hear me…she will look at me with the look of distance and confusion…but she is awake and coherent…last night she was playing with her brother…and I was cleaning the house…it got very quiet so I went to check on the kiddos…and I found Max cuddled in bed watching TV and Maddie just sitting in the hallway staring into the bathroom…I talked with her a minute and just thought she was thinking about a bath…I went back to check on her and she was still in the same position and sitting watching into the bathroom…I watched her for more then 20 minutes just sitting by herself looking at something in our bathroom…this is not “normal”…it is times like this that I am at lost for words and actions…I am not sure where she goes but I want her to be in the moment…because it scares me…as I have watched and observed other kiddos they do not loose themselves like Maddie…she seems to wonder…not physically but mentally…I am scared this is a precursor to something unknown…or maybe it is just my Maddie…

6 comments:

  1. I don't have any advice...sometimes it takes Sutter a few seconds to process things I say or ask him but nothing like what you are describing. I'm not going to tell you not to worry or be concerned because you are her mom and that's your job. Have you mentioned it to her doctor? Maybe they can "rule out" if in fact it is something to be concerned about or if it is like you say just Maddie.

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  2. Hmmm, I dont really have any advice either. Has anyone else noticed this with Maddie??

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  3. If you can, get it on video and take it to your Ped. then they will be able to see what you are seeing and at the very least it may ease your mind.

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  4. A friend's daughter, who has DS as well, used to do that. They got her checked and it turned out she was having little seizures and she would just blank out. I know that sounds scary and hopefully that is not what Maddie has, but better to be safe and question the doctor if that is a possibility.

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  5. I used to do that when I was little as well. My mom would say that I was watching the angels play. I am a "typical" adult.

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  6. Its hard when you worry about your kids. I was going to suggest trying to get her lapses on video too. Maybe her dr will have some more suggestions.

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