That is the GoOD news…the crazy news is that her stomach and esophagus do not push food through fast enough or efficiently…so here comes another medication…one that hopefully, fingers crossed will not be for life! But a couple of years minimal…when the doctor called to set up the medication today she warned me there could be neurological side effects for this drug…that it is very potent and she will take it 3 times per day! but NOT to worry because she has never seen the neurological side effects! Really that does not make me feel better…but I am very happy about not having to put Maddie under or through a surgery…her esophagus is shaped like an hour glass and to small for a cheerio to pass through…so we are to continue purees until ???? and she can handle chewing! she threw up for the speech pathologist during the swallow study…they believe that “bigger” foods may irritate her stomach and esophagus…but that is only a guess…there is only a slight narrowing of the esophagus and very common for TEF/EA babies…it is confirmed Maddie has severe acid reflux so we will continue that medication to help the pain…I am proud of my Maddie! She threw a HUGE fit with screaming, kicking, biting and now has broken blood vessels through out her little face! She is a fighter…Great job Maddie!!
alert: HUgE news she has teeth!! We saw them in an X-Ray!