Thursday, February 23, 2012

again esophagus!

Maddie has a little wiggle in her hurried walk…her butt swings from side to side so effortlessly…and so darn fun I can not get enough of it…she bounces as she runs and her giggle and hard loud laugh fill our home…it is hard not to smile when you around her…she loves her friends and she loves her brother even more…Maddie does not accept the word “no” and redirection is not taken lightly with her…Maddie is just that Maddie…with her crooked smile and glasses…she is my girl…Maddie’s esophagus is closing again…more then 50% already and surgery is for Wednesday the 29th of February one year to the day of when this whole closing of her esophagus began. I do not know much more then I did the first time it happened but I do know that it begins to close every 3 months or so and with that comes anesthesia, shots, doctors, hospitals, and objects being shoved down her esophagus in hopes that someday it will stay open. Maddie is a pro at this whole process…she can tell me it is closing by pointing to her throat, not excepting any food that cannot easily go down and by arching to her right side…Maddie is doing great only eating yogurt, cheese, soft noodles, soggy chocolate cheerios, ice cream and puffy cheetos…and I am glad we are starting to manage this instead being held hostage to her choking…

9 comments:

  1. You know I am thinking of you and praying. I am glad to see she is still enjoying soggy chocolate Cheerios and puffy cheetos...:)

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  2. I can totally picture her walking with the wiggle! :) I can't imagine how tough this must be for you but I'm glad that she's able to let you know when it's happening so that you can avoid the choking! Big hugs and lots of positive thoughts as always!!! :)

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  3. Maddie, she is quite the little trooper. I will definitely be sending good thoughts your way on the 29th Kim.

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  4. We'll be sending good thoughts for her surgery! Keeping fingers crossed that this does the trick for that sweetie!

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  5. As hard as this must be, how nice that she can tell you something is wrong! Hoping that she doesn't choke before her surgery to open it back up!

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  6. Maddie is one smart cookie, telling you something is up! You guys are doing so great and I really hope they can work out a permanent solution to this problem, so sorry she has to deal with another anesthetic so soon, but so glad it can be scheduled so soon at the same time iykwim. Thinking of you guys for Wednesday.

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  7. oh that's scary!!! praying for Maddie's surgery!!!
    is this something that will continue? Or as she grows will it stay open??

    Hugs and prayers!!!!

    keep us posted!

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  8. I wish that sweet little girl didn't have to go through so much.

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