Sunday, June 12, 2011

charts n chances...

check out my belly!
Maddie weight's a whopping 28 pounds...and is 30 1/2 inches tall...yeah she is HUGE! she gained 8 pounds in 6 months...I know this is because of her dilation...and not having to eat baby food to survive...Maddie is back on the "normal" charts...does it matter...nope...Maddie is healthy and eating like a champ...last night we were at the lake and I did not bring dinner...so we stopped for dinner...this is totally a new thing for us...to just stop for dinner...and me and Maddie shared some yummy fried chicken...it was truly amazing...Maddie has been referred to the ENT which was known from the beginning from her failed hearing tests...so in July we will go to the ENT and the heart doctor...the ENT will hopefully find out why she is not hearing correctly, snoring, and waking up with a gasp for air....as for the heart doctor we are hoping for a no change or a healed heart...having all these doctors appointments is stressful...the what ifs go through our minds...last night I had a little panic attach with the impending blood results from Maddie's doctor visit...we have no signs of anything wrong with her...but her doctor is very thorough and makes sure she has the proper tests yearly...and lets face it Maddie was only a 20% chance of being born with Down Syndrome and a 1 & 4000 chance of being born with TEF/EA...we get that anything can happen and change....therapies start again this week...I have missed the routine that it brings to our day...and I know Maddie has missed her teachers...and I am REALLY excited to show them the huge progress she has made in 3 short weeks...Maddie is walking 100% of the time...she will ask for your hand when taking a walk....she has introduced a new sound to her vocabulary oooodaaay! and she will answer a yes and a no to the question that is asked of her...my goals for the summer in regards to Maddie...enjoy her...

13 comments:

  1. She is doing sooo great! You mentioned snoring and gasp for air, I know that sleep apnea is common for our kiddos and they usually just remove the tonsils and adnoids...the ENT will know what to do though. Way to go on walking 100% of the time. Any advice for me...Emily can take steps but we cannot get her to transition to walking more than crawling.

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  2. Love your goal! Sounds like July will be a busy month, but with any luck all the appointments will bring nothing but good news...there's nothing worse than the fear of the unknown!

    Can't wait until Sutter is walking...not because I want him to meet the milestone before he's ready but because he's as big and Maddie and I'm tired of carrying him everywhere! :) Plus the thought of him grabbing my hand to walk melts my heart!

    Happy Sunday - hope you guys are having a great day!

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  3. Love that she wants to hold your hand to walk. Max hates having to hold my hand. Sounds like she has a classic case of sleep apnea. We're on oxygen at night until we can get tonsils and adenoids out. Fun stuff :)

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  4. we are visiting ENT this summer and probably looking at tubes and just had our cardiologist appointment. Right there with ya. Love that little chunky belly, so cute :)

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  5. She's doing so good!!! Love your goal, too. It's mine for all my kids (and I'm having to work at it. :)

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  6. The unknowns are so stressful and the anxiety of bloodtests ...any test, not something I am ever going to get used to. Hooray for walking 100% Owey is about 85% now and more with each day, he has just started wanting a "hand" he leads us all over the house giggling to himself ! loving it.
    Viv (Owens mum)(

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  7. She is doing great. Yes, all those tests and checklists of things to check out. As they get older, the lists get smaller so hang in there. :). Nothing like holding their hand as they walk beside...that never gets old. I still cherish it every time! I love your summer goal...it could not be more prefect!

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  8. She is so adorable! And she's doing so well! I know of a lot of kiddos going through the apnea stuff right now. We're working on getting Luc's heart fixed then we'll move on to his apnea. It's always something isn't it? You'll have to let us Colorado mommies know if you'll be making a trip to Denver, I'd love to meet you all!

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  9. I love your goal for Maddie for the summer...To enjoy her! That's my goal this summer with Russell as well. Hope all the tests in the next few weeks come back good!! Sending good thoughts your way :)

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  10. I understand how you feel, because one thing I've found with our kido's....they are never textbook! So its good to just test for everything, because its likely something strange will happen at some point in their little lives!

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  11. Wow, walking 100% of the time! That's so awesome! And answering yes and no questions is HUGE. What a great way to communicate wants and needs!

    Glad she's getting lots of tests. It's always good with our kids to check on so many things that are so common with them. And the clean bill of health from the cardiologist is the best sound in the whole world.

    Sounds like she has sleep apnea. Good to get this taken care of as soon as possible. Ugh, that makes me craaaazy when Samantha has a cold and wakes up gasping for air. I get so anxious.

    Love the adorable pic!!!

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  12. I love her big ole belly!! And yay on the walking! Maddie is such a superstar!

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