Chromosomally Enhanced

Saturday, November 4, 2017

Hello again!!

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this video will not disappoint! https://www.youtube.com/watch?v=AfLfqC2sXOE&feature=youtu.be
Sunday, October 18, 2015

awareness...

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the dreaded r-word...as a parent of a child born with Down syndrome I have moments when the r-word brings on a panic attack...I become ang...
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Monday, September 8, 2014

What Maddie is up to...

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Maddie began kindergarden last week...not sure how this happened so fast...in the midst of raising Maddie it felt like time slowed down...h...
4 comments:
Wednesday, August 6, 2014

Worry..

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Why I worry?? It is actually more complex to answer then one may think...the cliche is that I just love my kiddos so much...because I had s...
1 comment:
Wednesday, July 23, 2014

Terminology, Labels and Phrases

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Terms used to describe my kid...and my other kid... Ordinary - no special quality or interest; common Normal - usual, common type, natu...
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Monday, July 21, 2014

Eyes...

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Maddie wears glasses -obviously...people often asked me how we knew she needed them...it was the simplest of things...her pediatrician comm...
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Tuesday, April 1, 2014

Sshhh its a secret!

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But it is not...a secret...so in the hospital this past weekend the nurse asked me if Maddie has developmental delays...I ask her if she wa...
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Tuesday, March 18, 2014

Dear Mom, it's Ok...

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I really like the Dear new Mom letters...now that Maddie is almost 5....I like the hopeful reassurance that they give future Moms of Down s...
6 comments:
Monday, February 24, 2014

Decisions decisions...

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I have been a little stumped lately...you would think I could put it out here on the blogosphere and let go..I usually can...that's why...
8 comments:
Monday, December 9, 2013

One week...

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One long week...Maddie can be challenging at times...in a way I have never experienced...the things she does are just different and so unex...
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Monday, November 25, 2013

BeeBee...

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BeeBee is how Maddie refers to her baby doll...this doll is one of the most important items in our family...in fact I almost feel guilty in...
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