tag:blogger.com,1999:blog-3825000868976601610.post8874165254350441059..comments2023-10-28T05:24:47.518-07:00Comments on Chromosomally Enhanced: again :(Anonymoushttp://www.blogger.com/profile/06551567304485458524noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-3825000868976601610.post-18240901814894778582011-07-20T09:53:05.413-07:002011-07-20T09:53:05.413-07:00Wow! Thank God you trusted your instinct and took...Wow! Thank God you trusted your instinct and took her in. I don't know much about stricture, but will read up. Hoping that little Maddie is feeling better soon.Leahhttps://www.blogger.com/profile/08985688905432556253noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-4718417460903176432011-07-20T07:43:33.250-07:002011-07-20T07:43:33.250-07:00I have to say that your daughter Maddie is the cut...I have to say that your daughter Maddie is the cutest thing ever and that pole dancing picture... ADORABLE! You should make that into a poster and sell it! I am sorry to hear that she is having medical problems. Nothing is worse than seeing your child in pain and not being able to take it away. My son does not have Down syndrome but he does have a disease that causes lots of problems... he's had 2 major surgeries and I am planning on never having to see him in a hospital bed again! As a mother of a child with physical and learning disabilities… I am always interested in hearing the stories of others and how they have coped with raising a ‘special’ child. I recently saw a film called ‘Dakota’s Pride’ which showed the MANY wonderful blessings children with Down syndrome bring to this world. I can’t even express to you how moved I was by this film! I was amazed by all of their accomplishments… one young man with Down syndrome even graduated from college, drives his own car and is an advocate for other adults with Down syndrome! I know you get to experience these many wonders on a daily basis, but I thought I would share the following link for the video. I give it 2 thumbs up... way up!!! http://www.dakotaspride.com/ Thanks for sharing your story in a blog for the world to see! Hugs to little Maddie and to you too!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-60280083069672799822011-07-18T18:12:50.130-07:002011-07-18T18:12:50.130-07:00Colin and I said a prayer for Maddie tonight. I h...Colin and I said a prayer for Maddie tonight. I hope she's feeling better better and I hope you are too!Laurahttps://www.blogger.com/profile/00315418096327968090noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-62969257125721114082011-07-18T09:03:05.280-07:002011-07-18T09:03:05.280-07:00How scary. Praying for you all :)How scary. Praying for you all :)Kristinhttps://www.blogger.com/profile/11988590894638135312noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-22415579456286750292011-07-18T08:54:29.416-07:002011-07-18T08:54:29.416-07:00How awful!!! Poor little Maddie - and I can't...How awful!!! Poor little Maddie - and I can't imagine how terrifying that must have been for all of you. :-( I can't remember if I mentioned this to you before or not, but when I was a kid, my mother had to have surgery on her esophagus to make it bigger. My whole life up until then, she had to eat very, very slowly, taking small bites so her food would fit through her esophagus. I wonder if it was something similar to what Maddie's got. But now my mom is just fine, and has been ever since the surgery. I hope you can get answers/help soon!Beccahttp://www.thebatesmotel3.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-24374746612757654462011-07-18T08:37:45.543-07:002011-07-18T08:37:45.543-07:00This is so scary! For you and for Maddie. I have...This is so scary! For you and for Maddie. I haven't been on the computer for the past few days, but I wish I'd known you were in Denver. I was there for training (just a few miles away) from Weds to Saturday and would have loved to come and hugged you!!Melissahttps://www.blogger.com/profile/06474584473012742915noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-92207306924709009722011-07-18T08:11:33.124-07:002011-07-18T08:11:33.124-07:00Oh Kim, I'm so sorry! That sounded so scary! I...Oh Kim, I'm so sorry! That sounded so scary! I'm really glad Maddie is ok. You are one of the toughest Moms I know, I would have been a wreck, EVERY time! Sending a hug to you and Madds...Hoping your team of Doctors figures something out soon that will work for Maddie.JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-56848895386614645252011-07-17T19:48:01.216-07:002011-07-17T19:48:01.216-07:00Ugh how scary! Its also makes me wonder. Arina cho...Ugh how scary! Its also makes me wonder. Arina chokes a lot when she eats normal food. I always wondered if she aspirates normal foods because she aspirates liquids so much. And that her coughing just brings them up. But the other day she was eating her macaroni and cheese, and she just started freaking out! Crying, wouldn't eat anymore. She did drink her bottle though. I wonder if this is what is happening to her! Did they do a scope to find out what Maddie has? And has she ever had a FEE's study?Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-70845768159690135042011-07-17T19:03:10.459-07:002011-07-17T19:03:10.459-07:00Wow! What a wild ride that must have been! Our hos...Wow! What a wild ride that must have been! Our hospital visits have been for different reasons, but I know the feeling. I told a friend that I think they say our kids have "designer genes" because they are so expensive! So glad it didn't shake you and you were able to roll with it. It is amazing what we can handle (and how much we can trust our own instincts and research) when we are put in front of these situations. I sure hope all works our quickly! <br /><br />Thinking of you!April Vernonhttps://www.blogger.com/profile/10165895845816043237noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-91553745823146539982011-07-17T18:24:39.354-07:002011-07-17T18:24:39.354-07:00I cannot even imagine all you are feeling. I am t...I cannot even imagine all you are feeling. I am truly sending love and prayers your way. I wish there was more I could do to help you. It sounds like you are finally home safe and sound...and on the mend.Beckyhttps://www.blogger.com/profile/01201595211241091609noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-31366188500908457232011-07-17T16:46:39.901-07:002011-07-17T16:46:39.901-07:00Poor Maddie......Poor Maddie......Anonymoushttps://www.blogger.com/profile/17058970743241351812noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-44018894430491314802011-07-17T15:49:57.534-07:002011-07-17T15:49:57.534-07:00OH MY GOSH. I was reading this with baited breath ...OH MY GOSH. I was reading this with baited breath and tears. I'm so sorry. I can't imagine how scary! I hope Maddie continues to feel better and we're sending LOTS of hugs and good juju your way!Following our Arrowhttps://www.blogger.com/profile/10477489693492979644noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-16627287135094304282011-07-17T14:28:27.687-07:002011-07-17T14:28:27.687-07:00I'm so sorry. Every time this happens I think ...I'm so sorry. Every time this happens I think how brave you all are and how hard and scary it must be. Thank God she is ok now. Sending you big hugs!Erinhttps://www.blogger.com/profile/09879135187722664722noreply@blogger.com