tag:blogger.com,1999:blog-3825000868976601610.post183032450540644611..comments2023-10-28T05:24:47.518-07:00Comments on Chromosomally Enhanced: Anonymoushttp://www.blogger.com/profile/06551567304485458524noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3825000868976601610.post-67755630970911972222012-12-28T09:57:30.786-08:002012-12-28T09:57:30.786-08:00Ah so with you on this entire post! I hate the st...Ah so with you on this entire post! I hate the stories of people with Ds being prom queen or whatever. It always feels like a backhanded compliment or a cruel joke. Just makes me very uneasy...<br /><br />And the teenage stuff...dreading it and sad for it all at the same time. I *hated* high school. Kids are just mean and I don't want Claire to have to deal with crap like that. But I also want her to have the sneaky late night phone conversations with her friends and all that good stuff too! Melissahttps://www.blogger.com/profile/06474584473012742915noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-26353101541575095512012-12-06T20:28:57.539-08:002012-12-06T20:28:57.539-08:00I understand what you are feeling. My Luke is only...I understand what you are feeling. My Luke is only 2 1/2 and I usually don't think about the future, but sometimes it all crashes down on me. A good friend told me when Luke was born to remember my idea of "happiness", may not be what he needs. I think of all the things I went through, first loves, proms, college, etc.and want it for him. He may be perfectly happy without any of it, or with lots of it. It's such a hard balance. <br />We are reaching that point with the speech, I wish I pushed more, and am finally picking up the slack with extra services. Speech is the first "delay" that I have really cared about so far. It really scares me though.Cherylhttps://www.blogger.com/profile/12871005879102207495noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-18246945782371405162012-12-06T13:33:27.051-08:002012-12-06T13:33:27.051-08:00I'm so not a huge fan of "those" new...I'm so not a huge fan of "those" news stories either...I always feel like the kids/town are just trying to get recognition for doing something "special"...no hands out here please! If Sutter earns it great, if not then he doesn't need it. <br /><br />Speech is huge for me too. I spent a long time thinking it will just happen one day...after he learns how to walk the speech will come, after he turns 2 the speech will come...well, he run everywhere and is sneaking up on 3 and we have a couple of words! :( Needless to say I'm now pushing all the speech therapy I can get down his throat in hopes that it will help and it is, just slowly! Wrenhttps://www.blogger.com/profile/12859270873501744398noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-52014091880692083062012-12-05T19:01:39.730-08:002012-12-05T19:01:39.730-08:00I have the same thoughts creep in...There have bee...I have the same thoughts creep in...There have been times I have teared up thinking about how I hope Russell will be able to drive one day, hang out with friends, sneak a beer, have a girlfriend, get married...And the thought that these things may not happen literally crush my heart sometimes. I sooo know how you feel. It can hurt.<br />About the other thing...Kids with Ds being nominated for awards or that prom thing you guys do down there in the States...I am on the fence with that...Actually, to be honest, I tend to lean more to the side of I wouldn't mind if people treated Russell extra special, because he is. He wasn't born to be just like them...He will battle and struggle with things his entire life...And along the way people will see his beautiful spirit shine...And so if he makes them feel good, makes them feel like honoring him or giving him some award...I am ok with that. I don't think it's because they feel "sorry" for him or completely out of pity...But more because they see something in him that makes them feel a certain way...I don't know how to explain it and I suppose I am just rambling now! lol<br />Great post!! Love the ones that make a person think :)JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-59402318097399177102012-12-05T17:01:41.787-08:002012-12-05T17:01:41.787-08:00I totally understand your sentiment here. But is a...I totally understand your sentiment here. But is anyone okay with anything ALL of the time? I am sure there are times when we feel this way about all of our kids, times when we realize certain things are going to be hard for them. It seems like 'it' would be easier but then would it really be real? Some people seem to do a better job of hiding their or denying their moments than others :)<br />ckbryllianthttps://www.blogger.com/profile/15903634427934180138noreply@blogger.comtag:blogger.com,1999:blog-3825000868976601610.post-16218222442016462272012-12-05T13:40:03.772-08:002012-12-05T13:40:03.772-08:00I so get what you are saying here. To admit Kriste...I so get what you are saying here. To admit Kristen has a disability is hard for me. Although at times I feel like that strong person who is thankful, I still have moments when I am not yet over "it." I often wonder if, me , personally will always struggle in some way. I do not know, I also agree that if Kristen is made prom queen or wins a match, she does it the way every typical does. No special treatment. She will know. What I can say that even at the young age of five, she already has real friends. People do like her for who she is and not because she has a Down syndrome. I feel like this is a shimmer of hope for the future really. It is tough to think about that future at times so I often do not. I am learning to really just enjoy the moment because in a mere five years I am seeing that my fears are often far from the reality! :)Beckyhttps://www.blogger.com/profile/01201595211241091609noreply@blogger.com